It's over and we're all home! On Sunday Eden had kind of a rough night because of her cold. Her congestion and cough seemed a little worse than the day before and I had prepared myself for the fact that her cochlear implant surgery would probably have to be postponed. We got to the hospital at 6:30am Monday morning. We didn't have to wait long before moving into the pre-surgery room where we dressed Eden in her hospital gown and talked with her nurse and anesthesiologist. We told everyone about the fact that Holland was in the hospital being treated for pneumonia, and that we were pretty sure Eden had the same virus. The anesthesiologist checked her over, and said that because her lungs sounded clear and she didn't have a fever she was good to go for surgery. At that point I felt really emotional and not at all prepared. While we were waiting I cried a little bit thinking about how this was the last time I would see Eden as she was. I also starting worrying about her having another scar, about sending my baby for a surgery that she didn't really NEED, and about all of the risks involved with the surgery itself and the anesthesia. I found myself wondering if we were making the right decision.
Just after 7:30am the anesthesiologist came to get Eden to carry her back for surgery. We went to the waiting room to wait. And wait. And wait. We were told that Eden would be put to sleep using a mask, then they would put in an IV and intubate her (put her on the ventilator). There is no way that I wanted to be around to see that, so I am glad that they didn't make the offer. After about an hour and a half of waiting the audiologist came out and told us that they had done testing on Eden's right ear and everything looked great for implanting that ear. She said that she was able to get great responses and it was one of the easiest cases she had done in a long time. That was reassuring to hear. I wonder if she says that to everyone:) We waited another hour and 45 minutes for the surgeon to come out. He told us that everything had gone really well. They drilled down a portion of her skull behind her ear where the implant will sit. He said that the internal structure of her ear was fully developed and almost adult sized. He had no problem getting the implant completely into her cochlea and he feels confident that she will respond really well. Then he told us it would be about 15 minutes while they finished stitching her up and woke her up from the anesthesia.
After about an hour and a half we started to feel a bit panicked. I went to the receptionist who had Eden's nurse call me. The nurse said in the nicest way possible, that Eden was having a little trouble maintaining her oxygen saturation and they were working on finding a good setting for her. They wanted to watch her for a few minutes and would have us back in about 10 minutes. About 15 minutes later we went back to see her. This was the absolute hardest part of the process by far. Eden was crying and holding her breath long enough to turn blue and drop her oxygen saturation down to 50%. I knew it was just because she was mad, because she has done it at home when she has gotten really hungry/tired/mad. About three times she has cried hard enough that she forgot to breathe, turned blue, and actually passed out. It only takes a split second for her to start breathing again. The nurse seemed really surprised when I told her this. I thought it was just something quirky that some babies do. It was scarey the first time, but after that I just chalked it up to Eden being a drama queen. It takes a lot to get her riled up, but when you do...watch out!
I sat in a rocking chair and held Eden for a few minutes while she whimpered and cried. John suggested that she might be hungry, so the nurse went to get her a bottle of sugar water. I tease John that when the babies cry, he always thinks they are hungry, hot, cold, or poopy. Just because that's when HE cries. Well, in this case he was right on. Eden sucked down a 3 ounce bottle like she was starving, and after that was a lot calmer. I carried Eden in a wheelchair up to her room. Once there, we fed her a 3 ounce bottle of formula and she fell sound asleep for a couple of hours. When she woke up she was solemn, but not really crying. She looked around at us and checked out her new surroundings. She ended up sleeping most of the day but did wake up for a litte while and gave us some great smiles to reassure us that she was still our Eden. John and I left around 4pm for a few hours to visit Holland at her hospital, just about 10 minutes away. When we got there Holly was in a great mood. She was very happy to see us, was off her oxygen, and was just smiling and playing away. We hung out for a few hours, then I left to go stay the night with Eden. John stayed with Holland. Both girls had really good nights and slept pretty well under the circumstances (it's virtually impossible to get a good nights sleep in a hospital with how many times people are in and out of your room!!!).
Eden woke up around 5 this morning in a great mood. She was back to herself. Through the morning she sat up in a high chair, played with her toys, ate cheerios, watched cartoons, played games with mommy, and smiled at everyone who came in the room. One of the resident docs came in around 6:45am to take of her bandages. The incision is behind her ear and much smaller than I even anticipated. It is covered with tape and really doesn't look bad at all. Eden doesn't seem to notice it at all, and even lays with that side of her head down. She was on pain meds all day the first day, but by today didn't seem to really need them. She didn't complain at all. The only problem we had was that she had a little trouble coming off the oxygen. Every time they tried taking it off she would drop her oxygen saturation into the high 80s when she was sleeping. They want it to stay above 90, even when she is asleep. Holland was discharged around 11:30, and she, John, and my mom came to visit Eden. They seemed very happy to see each other. Actually, shortly after Holland got there, Eden started doing better off the oxygen. I wonder if she knew her sis was finally back. Around 1:00 they discharged Eden and we all got to come home together.
Both girls seemed very excited to be home. They were very animated playing with their toys and each other. They took a bath and splashed, and kicked, and had a great time. The only concern I had this evening was that the side of Eden head was becoming really swollen. I had the on call doctor paged and he called me back in 2 minutes. He said that swelling like this is normal, especially in babies, and should go down in a couple of days. We'll keep an eye on her. Otherwise, we all have come through an immensely stressful 5 days relatively unscathed. At least we are all still alive and kicking. We made it through another day. Can't wait to see what tomorrow will bring.
Here are some adorable pictures of the girls laughing at their Daddy. I have all kinds of sad, depressing posts running through my head, but I'm just not up to it right now, so I guess I'll try to keep it light. I just spent three days at a conference in Lansing. It was the first time I have been away from the girls for a whole entire day since they were born! I didn't know if I would be able to do it, but I actually enjoyed the time away. Lucky me, I have some great friends who live in Lansing who let me crash at their house (Thanks Donna and Tim!). Donna and I actually went out to a movie last night. And I got to sleep through the night 2 nights in a row, without listening to a baby monitor. It's amazing the difference that you get in the quality of sleep! I do get to sleep through the night at home, but it is a different kind of sleep when you are taking care of babies.
The girls had their 15 month appointment with the pediatrician on Monday. John took them with my mom's help. It was the very first doctor's appointment that I didn't go to! I did arm John with a list of questions and told him the info that I wanted him to write down for me. Holland weighed in at 17 pounds 4 ounces, and Eden at 15 pounds 2 ounces. I really thought Eden was closer to 16 pounds, but oh well. The doctor was pleased with both of their growth, and they are continuing to move up on the charts approaching the normal curve for their actual age. Holland is actually on the charts in head circumference, and length, and is pretty close in weight. Eden has further to go. Who knows if she will ever truly be on the charts for her actual age, given that she has the cards stacked against her. Children with CP are generally smaller and have a harder time gaining weight than other kids. I would just like to keep them in the same size clothes. What a pain it will be to try to keep track of two different sizes!
Both girls are learning so much and showing off new tricks all the time. Holland has about 4 words in her vocabulary. She says "mama," "baba" (which could mean bottle or baby?), "getcha, getcha," and "kisses." She also makes kisssing noises with her mouth, clicks her tongue, blows rasberries, and chuckles "hahaha" when we do it to her. She loves pictures of babies, baby dolls, and Eden, and wants to give them kisses and pat them on the back. Eden just recently learned to pass Cheerios from her hand to her mouth, a big accomplishment that we were eagerly anticipating! She is also holding her own bottle on occasion. Her newest and favorite trick is what we call "ojitos" (means small eyes in Spanish). This is what we say when she squinches her eyes up at us. She will do it in response to us, or just to be cute and get our attention. She also continues to do a lot of imitation, such as nodding her head yes and no, opening and closing her mouth, and pointing her index finger and shaking it around. Eden loves her toys. Right now her favorites are two maracas (one in each hand that she bangs together), the Bobble and Giggle Pals, and the Roll-a-Rounds Turtle. She is very systematic in her play, and likes to pop up one animal at a time, and take out one ball at a time, then we put them back in and she does it all again:)
