Wednesday, December 23, 2009

Sad News

I am so, so sad for my friends today. They have been through so much, and my heart truly breaks for them.

Pam and Namir first contacted me several years ago when their girls were very small. They live nearby and we have had a chance to meet in 'real life' several times now. Lessa and Ivy are 24-week triplets who lost their brother Galen at 11 days in January of 2006. Their brother Reid was born last October after a full-term uncomplicated pregnancy. He was unexpectedly diagnosed with Joubert syndrome after his birth and spent 105 days in the NICU.

Reid passed away suddenly yesterday after a complicated life. He was a lucky little boy to have spent his short life surrounded by so much love.

Please visit their blog to offer your sympathies, prayers, and kind words. I understand there is very little we can do to ease their pain, but at least we can let them know we care.


Pam said...

:) Thank you Billie, your comments touch our hearts!

Viscouse said...

Thank you Billie. You said "He was a lucky little boy to have spent his short life surrounded by so much love."
I feel comfortable saying that our lives, and by extension, Reid's, would not have been as rich or surrounded by love were it not for you & John's tales of how you bring love, support & advocacy into your girls' lives.

Thank you.

Ellen Seidman said...

I stopped by to say Merry Christmas, and was saddened to read about this, will go now and leave condolences.

Anonymous said...

Sad to hear about your friends loss. I will go to their site.
Love you, Laura