Monday, August 17, 2009

Conversations in the Dressing Room

"Mommy, you look beautiful. You should get that dress and wear it for Christmas!"

"Awww. That is SO CUTE!"

"WOW! Fancy!"

"I'm going to be little mom and you can be big mom. Hi Big Mom."

"Hey big mom. You should try this on!"

"Can I see your panties?"

"Mom, I like your boobs. When I grow up I want to have BIG boobs. Just like you."

Sometimes I wonder what people outside of the dressing room might think! Funny, funny girls.


Monday, August 10, 2009

My Five-Year-Olds



I honestly and truly cannot believe that five years have passed since Holland and Eden made their dramatic entrance into this world. In some ways these years seem to have flown by so fast, and in other ways they have dragged on and on. In the month leading up to their birthday I felt a lot of those old feelings of sadness and guilt creeping back into my head. They were less this year, for sure, but still there below the surface. Each year I relive the moments leading up to their birth. I remember very specific details of things I did, even what I ate, on the day that I went into labor. I vividly remember sights, sounds, and smells while I laid in that hospital bed drugged out of my mind, trying to keep my babies inside my body. I remember every detail of their birth.

One memory that sticks with me, and can still bring me to tears, is the memory of a single tear that slid down my husband's cheek as he looked into my eyes, when we heard that first faint squeaking cry and wondered how in the world we were going to survive what lay ahead. And even then, in that time of great fear, we had no idea how much our lives were about to change.

Five years later these children of mine bring me so much joy. I feel relieved that we have made it past some of those earliest struggles, when we still weren't sure they would be okay. Certainly there are struggles that still lay ahead, but at least we have gotten to know them, love them, and accept them for the little people they are. We know their strengths and their quirks, and we love them all the more for them. Those strengths and quirks are what make them who they are.

Holland is a unique and interesting little gal. She loves books and movies, or stories of any kind. She pays keen attention to detail, noticing and remembering the most unusual things. The other day I mentioned needing to run some errands. She asked me what an "errand" is. I gave her a basic definition, and John reminded her of the Dr. Suess story "What Was I Scared Of?" when the character in the story came out of the Brickel bush to run an errand...to get some Grin-Itch Spinach. Twenty minutes later, after sitting in the car while we went to pick up supplies for their bday, Holland chimes up, "No Dad...he didn't come out of the Brickel bush to get the Grin-Itch Spinach. He needed to Pick a Peck of Snide!" How in the world did she remember that!? We had only read that story three times total, and at least a couple of weeks before this conversation. And she really doesn't even know what a peck of snide IS!


Holland definitely marches to the beat of her own drummer and doesn't let societal norms dictate her tastes. She continues to love Spiderman, Cars, and most importantly TRAINS more than anything else. She knows all of the Thomas the Tank Engine characters and can spend hours building tracks and playing with her Thomas train sets. She also loves to dress up and pretend. She has a Spiderman costume that she likes to wear, and even wore the mask out shopping and to eat a few times. A lot of people comment on her costume, and she will hug me and say, "everyone likes my Spiderman costume Mom." She also routinely dresses up like princesses, fairies, rock stars, and Hannah Montana, depending on her mood. As often as she can, she gets Eden to play along with her, though Eden will sometimes refuse just to get Holland upset.


Just as she always has been, even as a baby, Holland tends to be a bit bossy and likes everyone to do things HER way. She has a hard time regulating her emotions (aka moody) when things don't go as SHE plans. In other words...she still throws a fit when it's time for the fun to end, when we won't play the game HER way, or when we won't buy her the toy she REALLY WANTS! She's also pretty reasonable though, and can usually be talked out of her fits before they go too far. She still has a hard time staying focused when there is a lot going on around her. In crowded or busy environments it is really hard to get her to look at me and listen to what I say. She also has a harder time emotionally in these situations, and can be prone to meltdowns.

Holland is happiest listening to music, riding her bike, digging in the dirt, playing with trains, reading books, watching movies, playing her Leapster, and pretending. She is smart, affectionate, and passionate about the things and people she loves. She can be a little bit dramatic and high maintenance, but that is all relative, and for the most part she is simply a delightful and interesting little girl who strays from the beaten path. I am proud of her uniqueness and hope that she continues to pursue her own interests regardless of what others think is "socially appropriate." (Yes, we did have a professional say in a meeting that "digging in the dirt" is not "socially appropriate" for a little girl.)

I love, love, love, seeing how my two girls, twins who grew together in my womb (short-lived as that was) and grew up in the same home under the same circumstances, are growing up to be So Very Different.

Eden is my girly girl. She loves all things pink and sparkly and definitely notices that some things are for "girls" and some things are for "boys." She becomes indignant if we ask her to play with something she perceives as for "boys" though she will make an exception for trains, and even cars if she can *be* Sally (or the female character). She is going through a big Hannah Montana phase right now, and loves listening to her music and singing along.


One of my favorite things that Eden does right now is sing to herself. Any time she is playing alone for a period of time you can hear her singing under her breath. She sings songs she knows, often repeating one line of lyrics over and over, or she makes up her own songs. Of course she sings "Best of Both Worlds" a lot, but another of her favorite lines is from a David Bowie song..."oh you pretty things, don't you know you're driving your mamas and papas insane!" Hmm. I wonder where she got that;)

Eden is a very visual, very observant little girl. She notices everything and likes to point out everything she sees. God forbid you have a giant pimple on your nose. Eden will notice and mention it the minute you enter the room! "What is that on your nose?" "You have a big pimple on your nose...hahahahaha!"

Eden looooves talking about when she and Holland were babies, as well as when John and I got married. Babies and weddings. She likes to dress up like a bride and pretend that she is marrying daddy. Yes, it's a little odd. She isn't satisfied with cursory answers either. She wants to know details. Did you wear a veil over your face? Why? Who walked you down the aisle? Did you marry Papa or Daddy? Why? What did you say at your wedding? Why? Did Daddy give you that ring? Why? Did daddy kiss you? WHY?

Then she tells me "when I grow up I'm going to live in my own biiiiiiig house. Bigger than this house. It's going to have a bedroom and no daddy. Actually, Daddy can live there too. He can sleep in my big bed with me." I ask, "What about me?" "No. You can live in your house and daddy can live in my house with me." I tell her there is no way that daddy is going to sleep in a big bed with her when she grows up, but she hasn't figured out that girls just can't grow up and marry their daddys!

She also told me that she wants to drive a pink convertible with blue stripes, and that she will take us all for rides. And she is going to have a job working on the computer. At daddy's work. Daddy is going to work there too. Hmmm. Well, I'm glad she loves her daddy!

As you can probably gather, language-wise Eden is doing AWESOME! She is talking all the time now, and the complexity of ideas that she is able to verbalize seems to increase every day. She is even bringing up things that she remembers from the past that she has the words to express now, whereas she didn't before. It astonishes me sometimes. She is also comprehending and recalling many more details, concepts, and story lines from books and movies.

On our recent camping trip (more on that later) she was looking at a compass and asked me what it was for. I explained that is shows us direction, like North, South, East, and West. She said "like in the Zax story by Dr. Suess!" (Another story from The Sneetches and Other Stories...highly recommend it!) We read the story again that evening, then as she was trolling around our campsite in her powerchair I could hear her saying "I never budge. That's my rule. Never Budge." I asked her what that means, "never budge", and she said "it means don't move!"

Both girls like to pretend and reenact what they see and hear constantly. If we are not reading a book or watching a show, we are acting it out. Luckily they are getting muuuuch better at playing together for extended periods of time, and they act out a lot of stories on their own. I occasionally get a break from having to *be* one of their characters, though I still hear the question a hundred times a day "Mom, who are YOU?" It's an interesting question, and one I am still figuring out for myself!

For the most part, life is good at age five. The girls delight and amaze me everyday. I love these kids and feel so loved BY them. It would be selfish to ask for more, when other people have so much less.

Even so, I still have my own personal pity parties once in a while, and I have to give myself permission to do so. I am doing a really hard job.

I still feel a tinge of sadness when I see other little girl twins, younger than my girls, running around playing together. Occasionally a wave of emotion will hit me when I am lugging kids and equipment out to another appointment, wishing we could be doing something fun instead. Or when I am changing yet another poopy diaper. Or spending an hour spoon feeding my kids their lunch...

In my own little world things feel pretty normal. But sometimes when I am out in the real world, I realize that we're still not quite there, and we probably never will be.

Five years out I feel more at peace than ever. But the intense love and joy I feel being the mother of these two amazing little people is still sometimes tempered by sadness and longing.

Sometimes I wonder how so many conflicting emotions can live in one person's heart.

Friday, July 31, 2009

Thursday, July 23, 2009

Growing Up


These pictures were taken at preschool. They show the girls when they started school in September, then again in May. Look at the difference...especially for Eden! In the first picture she needed help to sit in the chair. By May she was able to sit there on her own:)

Another sign they are growing up on me: Eden informed me this past week that she likes Hannah Montana, Barbie, and High School Musical (except she says "Hannah Ontana" and "Hi Cool Nookical")...but noooot Princesses. Apparently she is 4 going on what? 12?

High School Musical. Sheesh.

Friday, July 10, 2009

Holland's Eyes

Holland had her 5th surgery today...the fourth on her eyes. When she still in the NICU (October 2004) she had laser surgery on both eyes for ROP, then a follow-up laser surgery on only her left eye a couple of days later. Just before her first birthday (July 2005) she had surgery to correct strabismus (crossed-eyes) and the doctor moved the inside muscle on both of her eyes. We knew going into that last surgery that there was at least a 50% chance that she would need another eye muscle surgery in the future. So, today we did it again.

This time she had two muscles moved in her left eye and one in her right. We initially decided to do the surgery because her left eye was still intermittently turning in, and being the weaker eye (significantly more nearsighted) is at risk for developing amblyopia (lazy eye). The hope is that if the eyes are better aligned there is an improved chance that she will use them equally well and will develop appropriate binocular vision with her glasses. Since we decided to go ahead with the surgery, we also decided to move a second muscle in each eye...the one that causes one of her eyes to roll too far when she is moving her eyes from one side to the other (which eye depends on which way she is looking). Her ophthalmologist told us that she would NOT do surgery to move those muscles only...but since we were doing the other muscle in her left eye we would do those at the same time.

I tried really hard to get some good before and after pictures to show everyone what I am talking about. It's difficult because she doesn't look at me when I take her picture! Often she will turn her face in my direction, but her eyes will be looking somewhere totally different. I had to tell her, "Holland I want to take a picture of your eyes. You need to look RIGHT AT ME!" The other problem is that close-up, with her glasses on, you can't always see the eye turn. It happens more when she is not wearing her glasses, is looking at something far away, or is tired.

Anyway...here are some "before" pictures.

You can see the left eye turning in slightly here.


Here is the eye roll thing...see how the right eye is rolling further then the left? If she is looking the other way, the opposite eye will do this.


And sometimes, like here, you can't really see the eye turn at all.


I promised Holland a trip to the toy store to pick out a new Scooby-Doo toy if she did a good job today. That was all it took, and she separated from us without any tears. It helped that she knows her eye doctor really well because she has been seeing Holland and Eden since they were tiny babies. Dr. Tisch said that Holland was very brave right up until she fell asleep. There were no complications with her breathing or vitals, and the surgery itself went very smoothly.

Recovery was a little rougher. There were a lot of tears, shaking, and shivering as she was waking up. She was pale and wanted to be held. Then she was upset because she wanted the IV and Pulse-Ox OFF. She wouldn't stop crying and kept asking for the "Doctor." "Doctor please take this thing off!" It took me a few minutes to realize that any time I mentioned "go home" she got more upset. I finally figured out that she didn't want to "go home!" She was expecting to go STRAIGHT to the toy store for that surprise I had promised. John and I immediately started saying, "okay, stop crying and drink something so we can GET OUT OF HERE." But every time the nurse would come by she would say "go home" and the tears would start again. Finally Holland told her she didn't want to go home, she wanted to go to the toy store. And the nurse responds, "oh you can't do that...you need to go home and rest and take it easy today." Thanks lady. I get what you are trying to say but you are not helping me!!!

We finally got it together enough that we could leave and we headed STRAIGHT TO THE TOY STORE. Well...she ended up throwing up in the car on the way there, again on the floor of Toys R Us, and twice on the drive home. But by golly she got that Scooby-Doo toy, and while she wasn't feeling great physically, and least she felt good emotionally.

We had a 6:30am arrival time at the hospital, and were home by 11:30am. She was exhausted by the time we got home and ended up taking a 4 hour nap. When she got up she had a bath and some lunch. Then she watched Scooby-Doo while playing with her toys and seemed pretty much back to herself.


Her eyes are bloodshot and puffy, especially her left, but overall I think they look pretty good and straight. We'll have a better idea in a couple of weeks what the end product will look like. But you know, I thought she was beautiful before.

And I think she's beautiful now.

Tuesday, July 07, 2009

In Her Words

I printed out a copy of the "I Hope You Dance" post with your comments for Miss Darcy. She left a comment there, and I am going to repost it here so everyone who has been waiting for an update can read it.

Her amazing spirit comes through in her words.

"hi,this is miss darcy. i would first like to thank everyone for all of the well wishes! i especially would like to thank billie for writing about this. i can't tell you how lucky i consider myself to have been able to teach your girls this year! every time i would talk to my mom about how well the class was going and how proud i was of eden and holland, my mom would begin to tear up. it is of no surprise that on the night of the performance there was not a dry eye in the house when the curtain opened on the those 5 little girls. i have taught for 16 years and every now and then i am blessed enough to have moments like that! as far as my health goes... i am doing just fine! :-) i have a lot of work ahead of me, but by this time next year i should be back to normal! i fully intend on starting the dance season again this year as soon as i am on crutches. i will be in a wheelchair for a while and great minds must think alike because i felt the same as eden did when i was told! now i'm just going to have to find some stickers for my wheelchair to try and make it even half as cool as hers is!:-) thank you again to everyone and don't worry, i've already started thinking of ideas for eden's and holland's dance performance for the 2010 recital! we will all dance again!:-)"

Thank you for your comment Darcy. I am so happy to hear that you are doing so well. You are truly an inspiration to me and to my girls and we will continue to keep you in our thoughts.

Looking forward to the 2010 dance season!

And just in case you need a little boost today...here's a picture guaranteed to make you smile.


LOL

Wednesday, July 01, 2009

Wednesday, June 24, 2009

I Hope You Dance

When I was pregnant with the girls, I printed out the lyrics to the song "I Hope You Dance" by Lee Ann Womack and posted them near my desk at work. Since my girls' birth, I want to cry every time I read the lyrics, or hear that song on the radio. I had hope for the child that I did not yet know when I was pregnant. Now my hope for them is even deeper and more intense..both literally and figuratively. I hope they dance.

Holland and Eden's first dance class meant a lot to me on many levels. More than I even knew. I had kind of put it off...thought it wasn't a real possibility and did not feel up for another fight. I was sure I did not have the reserve for rejection in any form, and for that reason I decided not to pick this particular battle. I was afraid. Afraid of what I might face in asking if the girls could join a "normal" dance class. Afraid of the negative or fearful attitudes of parents and teachers that I might come up against. Afraid that having them in a dance class might make people uncomfortable at some level, and hence make me and them uncomfortable. It didn't seem worth it, even though I wouldn't have admitted that out loud.

What happened instead, is that my sister approached her girls' dance teacher and asked if she would be open to having my girls in the Petites class (ages 3-5) with two of their cousins (Claire and Kate). The teacher, Ms. Darcy, was very open and encouraging. She changed the time of the class so we could attend, and enlisted the help of another cousin (Jenna) to help Eden.

I was nervous going into it. It was something new, and I wasn't sure what to expect. Well, ultimately it turned out to be a very positive experience for all of us.

The program was just right for us in that it was not too over the top. I had imagined a group of picture perfect little girls in tutus, in a perfect little studio dancing in front of a mirror with a bunch of stage moms there to put their child's hair back in place if their pony tail slipped or to fix their makeup if their lipstick was smudged. Not for us. Instead it was a community education based class, affordable, with kids from a variety of backgrounds. It was held in the cafeteria of a school that runs a Headstart program. It was low key and low pressure, but at the same time organized and very fun!

A huge part of the reason the whole experience was so positive for us was Ms. Darcy. Darcy is young (in her mid-twenties), and clearly passionate about what she does. She teaches at the middle school level, in addition to teaching dance for several years. From the time we first met her she put my mind at ease. She was interested and completely willing to accommodate whatever needs Eden had..though it turned out she didn't need a whole lot. Eden just wanted to dance.

Some people don't know how to interact with kids who have disabilities. Ms. Darcy was not that way. From the first day she "clicked" with the girls, and appeared very confident and capable when working physically with Eden. More than many people, she really seemed to treat her just like all of the other girls. She challenged her, praised her, and even reprimanded her on a couple of occasions:) I never once felt like she felt "put out" in any way by having us there and I appreciated that more than I can say. She loved and accepted the girls, and they loved her right back. There were many, many evenings that they requested that I *be* Ms. Darcy so we could pretend to be at dance class!

Unfortunately the girls were sick, sick, sick in the days leading up to their recital. They were diagnosed with pneumonia on Tuesday and started antibiotics - the recital was on Saturday. We were just barely better *enough* to make it, and I fully admit to doctoring them up a bit so we could do it. I timed the breathing treatments, Motrin, meals, and naps so they would be feeling as well as possible and it worked out pretty well.

There were a few technical difficulties with the lights and sound, and one of the little girls in Holland and Eden's class flat out refused to go out on stage. She was the only girl who wasn't their cousin, so it ended up being five little girls from my family:) Despite these little glitches, the girls managed to do a good job and entertained us all.

They were ABSOLUTELY ADORABLE!!! They were the cutest kids in the show!!!

Okay, okay. That might just be my opinion. But, I was very proud because they both went out there and did their best. Eden was a ham. She remembered a lot of her moves, and looked to the bigger girls when she wasn't sure what to do. She had a smile on her face the whole time and was very excited to be on stage. Holland was not as sure of herself. She stood in one spot and chewed on her fingernails until her cousins took her hands and dragged her along. At the end of the show, they were all supposed to march off the stage. Holland stood there like a statue until her cousin Jenna came back to get her. When Jenna picked her up, Holland wrapped her little body around her and gave a big smile to the audience. It was really adorable. And uncanny in the fact that John predicted to the tee how they would act on the stage! I am pretty sure we would have had the same reaction if they had been completely well. Eden is a ham, and Holland gets a little overwhelmed when she is the center of attention.

No matter how you look at it...they danced.

THEY DANCED.





**On a more somber note, I cannot write a post about Holland and Eden's dance recital and not mention some recent tragic news. Just this past Sunday I got a call from my sister to inform me that Ms. Darcy was in a horrible car accident the night before. She has lost the ankle and foot on one of her legs. It looks like they will be able to save her other foot, although I am not sure it is out of the woods completely yet.

I have been feeling very sad the past few days trying to absorb this news. There is so much in life that is so scary, unpredictable, and completely unfair. I don't even know what else to say. I told Holland and Eden about the accident today. Holland asked the question, "so she can't walk anymore?" And Eden chimed in, in the way that only she could do, and said excitedly, "Ms. Darcy can just use a wheelchair like MEEEE!"

I told Eden that maybe she would...but just for a little while. Because I KNOW Ms. Darcy will walk again. I know she will dance again.

Ms. Darcy -

I HOPE YOU DANCE