tag:blogger.com,1999:blog-7915600.post3180393604572744567..comments2023-10-29T08:13:44.434-04:00Comments on Micro Preemie Twins: The Story of H & E: My Five-Year-OldsBilliehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.comBlogger32125tag:blogger.com,1999:blog-7915600.post-35349789227053199882010-04-07T15:26:35.706-04:002010-04-07T15:26:35.706-04:00I'm turning my comment into a blog post on the...I'm turning my comment into a blog post on the topic...now my blood is all boiling-like. :)Kristinehttps://www.blogger.com/profile/13994083459235522823noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-58320576083398272082010-04-07T15:26:35.705-04:002010-04-07T15:26:35.705-04:00Not sure if you see old comments, but I wanted to ...Not sure if you see old comments, but I wanted to respond to this particular post. <br /><br />I can't believe what some therapists will say/impose upon parents who are already concerned about development or behavior. My little girl, Katie, has a brain injury as a result of Meningitis. So far she has surpassed all of the limitations that her doctors prognosticated and still they insist on scaring the crap out of us with new things we should worry about...even if they don't exist. I'm pulling my hair out from an appointment with OT and ST yesterday. Katie had 7 words about 2 months ago and now has over 50. We're thrilled. Her therapists think we should stop rewarding reading/letter recognition and make her play with toys that she "should" be playing with. ARGGGG. As much as I hate to admit it, it really, really deflates me. Especially after working my butt off trying to teach her new concepts and, uh, stuff. <br /><br />Anyway...LOVE your blog. Your girls are adorable! They remind me of Katie. She also has a bit of Asian on her Dads side. My hubby also plays the drums...funny. :)Kristinehttps://www.blogger.com/profile/13994083459235522823noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-66070785600344622812009-08-28T15:10:16.229-04:002009-08-28T15:10:16.229-04:00I just came by... Mother of triplets turning 24yea...I just came by... Mother of triplets turning 24years old in november. Born at 35 weeks and three days, each over 5 pounds 5(2kg 500)<br />I just know how you feel when you say this:<br />"I still feel a tinge of sadness when I see other little girl twins, younger than my girls, running around playing together"<br />My sister has twin girls aged 12, and I feel just the same , because my two girls will never live what they live. One of our daughters suffered at birth and is mentally handicaped.<br />But I also understand this huge love you have for your daughters... even if she makes my holidays rather difficult with her behaviour!<br />My husband says: what would we do without her? We love her so much!Nicolehttp://comptines.over-blog.comnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-84740917628720010622009-08-24T23:25:50.143-04:002009-08-24T23:25:50.143-04:00I loved this post. Your daughters are so beautiful...I loved this post. Your daughters are so beautiful and charming. Happy birthday little ones!Sarahttps://www.blogger.com/profile/02747382929049494704noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-20433173342421628582009-08-21T08:15:38.949-04:002009-08-21T08:15:38.949-04:00What a beautiful post. Your girls are lovely.What a beautiful post. Your girls are lovely.Melanie https://www.blogger.com/profile/10523026102207613431noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-25833270836625741782009-08-17T22:29:16.312-04:002009-08-17T22:29:16.312-04:00What a beautiful post. Holland and Eden are bless...What a beautiful post. Holland and Eden are blessed to have parents that love them as much as you and John do.<br /><br />Tell Holland to keep taking that other path, I've spend 56 years on it and while it can be difficult at times most of the time it's wonderful- what do you mean playing in the dirt is not socially acceptable for girls - bah humwinecathttps://www.blogger.com/profile/07033530470009978632noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-48368707625136276842009-08-17T21:22:27.554-04:002009-08-17T21:22:27.554-04:00I always love your birthday posts, and this one is...I always love your birthday posts, and this one is especially fantastic--the girls have grown up so much, and are so beautiful!<br /><br />As for being a little girl playing in the dirt...I turned out well! :)NReneehttps://www.blogger.com/profile/09605510128557619172noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-32918287206157826592009-08-17T15:46:35.038-04:002009-08-17T15:46:35.038-04:00In what context did the professional tell you that...In what context did the professional tell you that digging in the dirt was inappropriate socially? -- Was it in a diagnostic way or just observing? -- Either way, I hate people putting lables on everyone and everything!! I hope holland continues to not care about how she is "supposed" to act!<br /><br />"we did have a professional say in a meeting that "digging in the dirt" is not "socially appropriate" for a little girl"Cloehttps://www.blogger.com/profile/05597409763569306721noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-89427262107637683892009-08-17T01:12:40.435-04:002009-08-17T01:12:40.435-04:00Thank you so much for continuing to allow us to sh...Thank you so much for continuing to allow us to share in your journey. I wasn't able to become pregnant, but am now a proud mother to a perfect and amazing (whose child isn't perfect?!) 20-month-old little girl. I find the mix of not regretting a single thing that happened (or didn't happen), and the pain of letting go of an experience I'll never know, make strange bedfellows. However, reading your blog helps me to see that we all have these conflicts, albeit in varying degrees. Acknowledging both the pain and joy is a cathartic and necessary truth. Thank you. <br /><br />Your girls, unlike other children I don't know IRL, touch my heart in a way I can't adequately describe. Their spirit is palpable through your posts. They are very lucky girls to have you and John as parents; but more importantly, you two are so lucky to be parents to such amazing little people.<br /><br />Thank you for showing me what the ideal family looks like from the inside out.Meganhttps://www.blogger.com/profile/14591016025566097464noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-39124237768741590572009-08-16T23:37:17.836-04:002009-08-16T23:37:17.836-04:00Thank you for sharing your story, and doing it in ...Thank you for sharing your story, and doing it in such an honest moving way. The love you have for your girls shines through, even when you write about the hard things. They will cherish your words when they grow up.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-58611203737072426902009-08-14T09:21:30.512-04:002009-08-14T09:21:30.512-04:00I've just discovered your blog and have practi...I've just discovered your blog and have practically read the whole thing in a week! Your girls are just ADORABLE!! I am simply amazed by them. My first pregnancy was triplets who were born at 24 weeks, sadly none of them survived past 2 weeks. I went on to have twin girls myself a year later. One of the girls has a neurological condition, not CP, but similiar to a mild case. She has a lot of motor skill problems. I was amazed when Holland was able to ride that trike! Abby's 6 1/2 and still can't ride a bike! She can't figure out the peddling. I understand your somewhat saddness in seeing other twin girls play and run around together. Abby can walk and run just fine, but she has never been able to keep up with her sister. It makes me sad sometimes, but I know it could be so much worse! I also have a daughter born a few days after your girls as well as a younger son. Thanks for sharing your blog! Even though are circumstances are different, I enjoy reading about someone else who has some of the same problems as myself. Like school, I had to put my twins in different preschools and this last year I had to struggle whether or not to hold Abby back. With twins, you want to keep them together and many other people don't get that. Enjoy the rest of your summer!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-75012155150121674092009-08-13T18:44:49.781-04:002009-08-13T18:44:49.781-04:00I've been reading your blog for over a year no...I've been reading your blog for over a year now, and it's amazing how much they've changed and grown. They really are amazing little girls, but you knew that already, right? ;)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-39965206637465727882009-08-13T14:22:25.364-04:002009-08-13T14:22:25.364-04:00I love reading Holland & Eden's b-day post...I love reading Holland & Eden's b-day posts each year. It's nice to see how they have changed over the past year and what they are interested in and accomplishing now. You and John are wonderful parents to two amazing, beautiful girls! Love all the pictures too!<br /><br />Love,<br />DawnAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-58236373366043675402009-08-13T12:12:20.226-04:002009-08-13T12:12:20.226-04:00What great girls, and what a great mom!
Happy Bir...What great girls, and what a great mom!<br /><br />Happy Birthday!Sadiahttps://www.blogger.com/profile/04042551936789254047noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-34998792306135588162009-08-13T02:55:13.368-04:002009-08-13T02:55:13.368-04:00This statement: "In my own little world thin...This statement: "In my own little world things feel pretty normal. But sometimes when I am out in the real world, I realize that we're still not quite there, and we probably never will be." <br /><br />made me a bit teary-eyed. That is exactly what I'm going through with my own twins (who will be 8 in a month). My son is autistic & when we're at home, it's normal and I'm used to him and I honestly don't even notice his quirks. But then we go out into the world and his delays are so glaringly obvious... sometimes it's very painful, especially when society isn't overly nice or understanding.<br /><br />Anyhow, thanks for sharing your girls and your heart. I always enjoy reading what you have to say.Katehttps://www.blogger.com/profile/10184386463890917186noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-49183997038387660212009-08-13T01:02:19.205-04:002009-08-13T01:02:19.205-04:00The love for your girls just oozes out of your wri...The love for your girls just oozes out of your writing. They are lucky to have you for their mother - even if Holland is planning on running away with her Daddy and leaving you behind. (grin)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-61283604846050304832009-08-12T23:48:46.089-04:002009-08-12T23:48:46.089-04:00You are such an amazing mother my dear friend, wit...You are such an amazing mother my dear friend, with amazing children. Much love, JessAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-55413456241530538082009-08-12T22:46:16.464-04:002009-08-12T22:46:16.464-04:00What beautiful sentiments Billie! And even more b...What beautiful sentiments Billie! And even more beautiful girls.<br /><br />Happy Birthday!Annehttps://www.blogger.com/profile/07192126503448477083noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-77773665281644137802009-08-12T22:42:04.839-04:002009-08-12T22:42:04.839-04:00What a beautiful post! I love the tribute to your...What a beautiful post! I love the tribute to your girls and their personalities. I bet they learn a lot from each other and their different perspectives. <br /><br />Thank you for your honesty - parenting is a roller coaster - add special needs to the mix and that makes the ride a bit more bumpy. There are defintely joys that could never be found any other way. There are also heartaches too. You share both beautifully.Wherever HE Leads We'll Gohttps://www.blogger.com/profile/15042627234253638468noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-79282812735516699442009-08-12T22:17:48.013-04:002009-08-12T22:17:48.013-04:00Happy 5th Birthday girls. Elizabeth will be 5 in D...Happy 5th Birthday girls. Elizabeth will be 5 in December and it seems so old.<br />I got goosebumps as I read how John teared after hearing Hollands cry> My hubby was sitting by my head when Elizabeth came out and that tiny kitten mew had us in tears but it also told me that things would be okay. As for beeing drugged so was I, I spent 30hrs upside down in an narcotic haze before Elizabeth was born, it was awful. <br /><br />Holland is much like Elizabeth waho as her Resource Consultant says 'she has her own agenda'. Elizabeth has an eccletic taste as well and loves dinosaurs, bugs and getting filthy dirty. I have been told to think of ASD as her interests are different from her peers but is she was a boy it would not matter, (double standards).<br />Elizabeth is very emotional and distraction is maddening at times and in a busy place she is unmanageable. <br />It is crazy 5 years have gone by and like you I am coming to peace with how Elizabeth is turning out and how her disability affects her.<br />You have worked really hard and it has payed off the girls are doing amazing.BusyLizzyMomhttps://www.blogger.com/profile/09116803603107554804noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-27938720785055058552009-08-12T22:03:48.087-04:002009-08-12T22:03:48.087-04:00Great post Billie. Love all the details about the ...Great post Billie. Love all the details about the girls' personalities. I especially love that I've been able to see the girls in real life more lately, so when I read your descriptions of them I actually know what you're talking about. You're doing a great job!!<br /><br />AmyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-91326861283659580132009-08-12T20:56:11.325-04:002009-08-12T20:56:11.325-04:00Great tribute to your unique and amazing girls. A...Great tribute to your unique and amazing girls. And important, also, to continue to recognize and honor the pain that is still there around their birth and their current struggles. I feel the same way, that at home our world seems totally normal and then we go out and I see other kids moving around with such ease, and feel the stares of people as Hannah marches by in her walker, and it's a rude reminder that our normal is not so normal after all. <br /><br />Here's to hoping that even if the pain never fully goes away, it gets a little bit easier each year.CP and Mehttps://www.blogger.com/profile/09516244215791006853noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-85514060012350659192009-08-12T20:43:36.513-04:002009-08-12T20:43:36.513-04:00I'm so glad that you keep up this wonderful bl...I'm so glad that you keep up this wonderful blog. Yes, it can be hard but these are some beautiful girls you are raising!Katyhttps://www.blogger.com/profile/02189007616883663434noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-26891548053459325322009-08-12T19:40:50.270-04:002009-08-12T19:40:50.270-04:00nice update holland sonds a lot like me at f...nice update holland sonds a lot like me at five yearsold are the kids doing kinderggarten this fall.AZ Chapmanhttps://www.blogger.com/profile/07649451111980332722noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-57059575907541678072009-08-12T17:55:47.207-04:002009-08-12T17:55:47.207-04:00When I read your blog, and look at your beautiful ...When I read your blog, and look at your beautiful girls...I feel proud. Proud of you and your family. Proud that I know such brave people.<br />And sometimes, I feel sad, just as you have expressed, but I know these girls are HUGE blessings. Despite the obstacles that may come your way, and the hurdles that you have had to overcome in the past, Holland and Eden are blessings to you and your family. they are inspirations to all who visit this blog.<br />We love you, Billie, John, Holland and Eden...<br /><br />Scott, Kendra, Merry and Kelsey LynnKendra Lynnhttps://www.blogger.com/profile/10987312000889846337noreply@blogger.com