tag:blogger.com,1999:blog-7915600.post4329320748847639974..comments2023-10-29T08:13:44.434-04:00Comments on Micro Preemie Twins: The Story of H & E: So Much to SayBilliehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-7915600.post-52241724055006120772015-06-11T21:42:24.710-04:002015-06-11T21:42:24.710-04:00I've followed your blog since the girls were t...I've followed your blog since the girls were teeny. It's so nice to see them doing well! I teach hearing impaired kids, and they all struggle with background noise. CIs and HAs only amplify sounds that are about 3 feet away. Does Eden have an Educational Audiologist or Teacher of the Deaf/HOH on her IEP team? With smaller districts, this is tricky, but getting a school-supplied FM system would be so good for her. It attaches to the CI, and the person speaking wears the mic, which cuts out background noise. Phonak has a mic that we use with our social kiddos that has a super zoom, zoom, and omni setting. She'd be able to put it on a table and hear all of her friends more clearly on the omni setting, or hAve her teacer wear it on super zoom for spelling tests. One of our high school students was just provided with an FM system through CSB. She's too young for that, but there are agencies that will help with equipment costs if there is a need. If she could try one at school, you could document the effectiveness on the PLOP for documentation to send to agencies. I have seen some FMS on ebay that are reasonably priced too, but they likely don't have warranties and you'd need an audiologist to program one. Rachelhttps://www.blogger.com/profile/14586834347688617529noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-63989419031219611942015-06-05T11:24:20.254-04:002015-06-05T11:24:20.254-04:00As a new father of two 24 weekers, I am grateful t...As a new father of two 24 weekers, I am grateful that you decided to share your story with us. It's inspiriting and filled with hope. <br /><br />Your daughters look amazing. I hope the surgery went well. <br /><br />Grateful - JAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-34550187480125877222015-02-02T21:37:17.179-05:002015-02-02T21:37:17.179-05:00I was wondering the outcome of Eden's surgery ...I was wondering the outcome of Eden's surgery has been. My daughter is 7 and we keep talking about this surgery. She was a preemie and has a paralyzed vocal cord. Just wondering if Eden's voice is much louder. Could you email me at jsouthern@roadrunner.com? Jamiehttps://www.blogger.com/profile/10494075543289865004noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-75819215409259834502014-05-14T00:48:44.344-04:002014-05-14T00:48:44.344-04:00I'm 19yrs old and was a 24-weeker, got PDA lig...I'm 19yrs old and was a 24-weeker, got PDA ligation surgery at 3 years old. For my whole life I've had a low/raspy/hoarse voice, though that could definitely just be from prolonged intubation/ventilation. Hope all goes well with Eden's surgeries, it must be tough to jump back into the medical scene again. She has grown so much, she's gorgeous by the way!Colleenhttps://www.blogger.com/profile/07745925390660958879noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-23667955612973146352014-04-29T20:09:49.997-04:002014-04-29T20:09:49.997-04:00Daddy and Daughter are both very cute.Daddy and Daughter are both very cute.Daniellehttp://daniellesdailylifeblog.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-38447129841225920372014-04-10T01:51:43.992-04:002014-04-10T01:51:43.992-04:00Oh, my word, look at that precious child! When I ...Oh, my word, look at that precious child! When I started reading your blog, she couldn't hear, couldn't stand, couldn't crawl, couldn't speak at all. Look at the marvels time and love and doctors and hard work and prayers have wrought! Be brave, Eden (and Mom and Dad and sisters.) You can do this!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-62917765995450564892014-04-08T18:41:24.716-04:002014-04-08T18:41:24.716-04:00i hope the surgery was a success! i'm eager to...i hope the surgery was a success! i'm eager to hear how she is doing! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-52491378519838763852014-04-06T22:43:01.105-04:002014-04-06T22:43:01.105-04:00I hope everything went smoothly for Eden. I'l...I hope everything went smoothly for Eden. I'll be praying that the surgery will be successful and she'll have great volume to her voice.Khttps://www.blogger.com/profile/07033823622722768455noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-37731718004686118382014-03-30T15:10:42.551-04:002014-03-30T15:10:42.551-04:00Will be thinking of Eden and you all! Hope the su...Will be thinking of Eden and you all! Hope the surgeries go as well as possible and that these help Eden hear and be heard! <br />Annnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-60241113081742431832014-03-29T15:28:51.150-04:002014-03-29T15:28:51.150-04:00Gorgeous photos. She is such a beautiful girl, and...Gorgeous photos. She is such a beautiful girl, and looks so happy!<br /><br />I can imagine how hard it must be to be facing two surgeries in such short order, but it sounds like these are going to be really important for her future. I hope everything goes gloriously well.Sarahttps://www.blogger.com/profile/02747382929049494704noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-39596547202696057582014-03-29T09:56:57.907-04:002014-03-29T09:56:57.907-04:00She looks so happy going to the dance with her Dad...She looks so happy going to the dance with her Daddy. I hope the surgeries will go smoothly and soon she'll be able to enjoy a noisy environment like a dance even more!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1862844302878478642014-03-27T20:04:40.969-04:002014-03-27T20:04:40.969-04:00Hope all goes well on her vocal cord surgery! So ...Hope all goes well on her vocal cord surgery! So excited to read about the second implant surgery, that should make a huge difference for her! Will await updates here.<br />Nancy RoddyAnonymousnoreply@blogger.com