tag:blogger.com,1999:blog-7915600.post3241977254728422580..comments2023-10-29T08:13:44.434-04:00Comments on Micro Preemie Twins: The Story of H & E: What did you DO all day?Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-7915600.post-90673982507659237652007-05-24T13:54:00.000-04:002007-05-24T13:54:00.000-04:00=) what a lovely insight into your family life (fo...=) what a lovely insight into your family life (found you through disabiity blog carnival)! I'm 25 and I eat in front of the tv as I can sit in a supportive chair with my feet up to stop them going blue... Really enjoyed your pictures too, I should include more when I write, am off to a supportive chair to eat ;) xxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-15382068314346618182007-05-24T07:12:00.000-04:002007-05-24T07:12:00.000-04:00Everyday I feel as if I never get anything done ar...Everyday I feel as if I never get anything done around here. Glad I'm not the only one.Miracleshttps://www.blogger.com/profile/02443177533757861274noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-38932460065327350532007-05-22T21:16:00.000-04:002007-05-22T21:16:00.000-04:00Billie - one more thought and one question. I love...Billie - one more thought and one question. <BR/><BR/>I love that first picture especially. They are so connected as sisters. So cute.<BR/><BR/>The question is: what kind of stander thingy is that?! I want to try Ellie in it. No rush obviously on the answer.Kathrynhttps://www.blogger.com/profile/16388107764837538301noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-75142393903146184122007-05-22T21:14:00.000-04:002007-05-22T21:14:00.000-04:00Billie- your day sounds alot like my day except th...Billie- your day sounds alot like my day except that when Ellie naps I get some down time. Having two is definitely more difficult. But we are dealing with the same sleep issues. That is really hard. Ellie is doing the same thing except it's not the bed she wants but my lap. She wants to sit on my lap or sleep on top of my chest. It is sweet but oiy! We are going to try the periactin too which will hopefully clear Ellie's constantly runny nose and make eating a good idea again. I am glad you had a breakthrough with the formula. <BR/><BR/>Sigh. Lots of hugs to you warrior mama!<BR/><BR/>KathrynKathrynhttps://www.blogger.com/profile/16388107764837538301noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-29297571836996087132007-05-22T16:27:00.000-04:002007-05-22T16:27:00.000-04:00Eating in front of the TV? Not bad at all. Lol. It...Eating in front of the TV? Not bad at all. Lol. It really does work. In the eating disorder facility I was in, we ate dinner in front of the TV some nights, and those were the nights I ate more because I was to focused on the show to be focused on what i was eating.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-14070417053158347422007-05-22T16:02:00.000-04:002007-05-22T16:02:00.000-04:00We just finished an intensive feeding program with...We just finished an intensive feeding program with Noah and part of the feeding protocols involve using TV as a reward/distraction between bites. We use polycal to fortify Noah's food and duocal for his drinks: Pediasure and Boost Breeze. We're fortifiying up to 35 cal/oz, though. I agree with the other posters who say 'whatever works'!Emilyhttps://www.blogger.com/profile/03472927387632982961noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-8486236449849131592007-05-22T01:51:00.000-04:002007-05-22T01:51:00.000-04:00hi! i also read the whole thing, but must admit i...hi! i also read the whole thing, but must admit i never knew you could fortify anything, including milk, yourself :) glad to hear about the pony walker. and yes, keep that girl outta your bed! you remember raven was in 2nd grade when she finally left amy and ron!! you don't want that :)<BR/><BR/>love you guys.<BR/>lisaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-280377692174066882007-05-22T00:16:00.000-04:002007-05-22T00:16:00.000-04:00I think I fixed it! Some weird Blogger problem......I think I fixed it! Some weird Blogger problem...Billiehttps://www.blogger.com/profile/10589229199716201638noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-66831581306588588682007-05-21T20:19:00.000-04:002007-05-21T20:19:00.000-04:00Hi guysI am de-lurking to say that I read your sit...Hi guys<BR/>I am de-lurking to say that I read your site every day (as a Grandma of two myself) and am inspired by your optimism and energy.<BR/>The girls are so lovely- also so different- it is so special to get a glimpse into another's life like this. <BR/>Alas, today I was unable to get any pictures- and YES, I did read the WHOLE thing!<BR/>I was wondering whether you had tightened security or something?<BR/>I would sure miss "seeing " the two of them!<BR/>Please let me know if this is the case, or if my computer is giving me a hard time, as it likes to do!<BR/>Love, Grammacellogrammacellohttps://www.blogger.com/profile/15320660302383943815noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-18530724966874770972007-05-21T19:57:00.000-04:002007-05-21T19:57:00.000-04:00You're doing great---keep up the good work! My ki...You're doing great---keep up the good work! My kids are now 10 and 8, but my husband has taken a job in another state and I am on my own until kids and I move as well in a few weeks. I have also gained a new admiration for single moms, and my workload is mostly playing chauffeur at this stage. Can't imagine doing bottles and diapers!<BR/><BR/>Stick to your guns on the bedtime issues and be consistent in your expectations. The girls' needs are important, but so is your marriage. They will be secure in knowing that mom and dad are committed to each other. You will be thankful later on.<BR/>God bless,<BR/>Lori in FLAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-27831705430250882422007-05-21T13:09:00.000-04:002007-05-21T13:09:00.000-04:00YAY on the Pony Walker!Glad you found a cheaper so...YAY on the Pony Walker!<BR/><BR/>Glad you found a cheaper solution. With Miss P being lactose intolerant, switching from Enfamil Lactose free to Lactose Free milk was even more expensive, so I found a cheaper way, or so I thought.. Rice milk fortified with lactose free Ensure. It worked out to being the same price as Lactose free milk. <BR/>After discussing with my pharmacist, she suggested we try the Lactaid drops in whole milk - start out a max dose and then try to slowly wean her back since at this age, they can't verbalize the belly ache from the lactose. <BR/>So as of today, we're weaned back 5 drops a litre (10 per litre vs 15 or 40 drops per gallon vs 60) and I get approx 9 gallons of dosage per $20 bottle of Lactaid.) I did try going to 8 per litre, but that wasn't enough and we had lotsa vomit :(<BR/><BR/>Its amazing what us parents do to "trick" our children that doctors and other professionals can't suggest and they're the ones with the formal education.Kristinhttps://www.blogger.com/profile/09499823088655188550noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-34736928667284445002007-05-21T12:35:00.000-04:002007-05-21T12:35:00.000-04:00If you put a movie on in the computer in the kitch...If you put a movie on in the computer in the kitchen, it doesn't count as TV correct? Guilty!<BR/><BR/>So glad to hear about the pony walker. Thanks to all of Billies' bloggers who e-mailed me and offered to help make this happen.Allisonhttps://www.blogger.com/profile/07049469998249635875noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-35733134263767554992007-05-21T09:48:00.000-04:002007-05-21T09:48:00.000-04:00Thanks for catching us up on your happenings!We fo...Thanks for catching us up on your happenings!<BR/><BR/>We fortified to 27 cal for a long, long time too. First my breast milk, then the Enfacare. For awhile, I was even adding something else to bump to 30 cal. That's great that you're able to fortify the whole milk! Rather than doing that we switched to the generic pediasure in the powder form and I remember how excited I was to be saving that money!! <BR/><BR/>One thing that really help with our eating was switching to lactose free whole milk. My girls were never diagnosed lactose intolerant, but one time when they were really sick and vomiting, we switched to help with the puking and WOW, what a difference that made! We never went back to regular milk.<BR/><BR/>I hope you get the sleeping thing figured out soon!Minnesota Mommahttps://www.blogger.com/profile/17311338536328015242noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-15292087404712008182007-05-21T09:15:00.000-04:002007-05-21T09:15:00.000-04:00Wow! You have just unwittingly solved a problem fo...Wow! You have just unwittingly solved a problem for me... I have been reading your blog for a few months now, having stumbled across it and been charmed by your two lovely girls.<BR/><BR/>I have a ten year old son who two years ago started on adult doses of Periactin for severe allergies, and who, two years ago, had a sudden and unexpected increase in appetite... He has gone from being too thin to being non too thin indeed, and I shall be requesting a switch of meds at our next appointment. NOTHING was said about this, so thank you very much for this off the cuff comment!<BR/><BR/>(I know it's very tactless to talk about an overweight kid when you are struggling to get your girls to gain weight, but I am sure you will agree that a happy medium would be the best for everyone all round!)Vickyhttps://www.blogger.com/profile/13586437968219484958noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-66838707826576018892007-05-21T08:03:00.000-04:002007-05-21T08:03:00.000-04:00I am most definitely keeping in mind the fact that...I am most definitely keeping in mind the fact that you can fortify whole milk for the future... :o <BR/><BR/>Yay for a new pony walker!<BR/><BR/>-Sarah<BR/>http://sydney_lou_who.livejournal.comSarahhttps://www.blogger.com/profile/04313651557737242622noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-41147695926354478372007-05-21T05:41:00.000-04:002007-05-21T05:41:00.000-04:00I've been trying to distract Hallie with videos, p...I've been trying to distract Hallie with videos, playing, etc to get her to eat, too. If you had talked to me a year and a half ago, I'd have been horrified at this prospect, but now, whatever works, works.<BR/><BR/>Anyway, what are you guys using to fortify milk up to 27 kcal? Right now we're giving Hallie Pediasure even though she's not quite a year old (actual). I've considered Carnation instant breakfast and whole milk as an option for when she turns a year old next month (next month!!!???!!! how strange that sounds). But I'd love to know what other options might exist for fortifying her food...abbyhttps://www.blogger.com/profile/03403145277760263562noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-19529507174323662042007-05-21T05:20:00.000-04:002007-05-21T05:20:00.000-04:00The whole family was eating dinner in front of the...The whole family was eating dinner in front of the TV for several months (years?) with our preemie daughter with feeding difficulties. We chose a suitable video (not too interesting, to too boring) and our daughter would eat far better than at the dinner table. She really needed the calories and wee really needed the peace.<BR/>Most other meals were eaten with us reading to her. If she stopped eating, we stopped reading. And she really loved us reading to her. Whatever works!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-83688768765658289842007-05-21T04:34:00.000-04:002007-05-21T04:34:00.000-04:00yes i care about your girls! I have backtracked an...yes i care about your girls! I have backtracked and read all your entries and all I can say is WOW. As I said in my previous comments, I really really admire your strength :)<BR/>Your girls are so adorable.louannhttps://www.blogger.com/profile/05522758277418450920noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-87049768111698987092007-05-21T01:38:00.000-04:002007-05-21T01:38:00.000-04:00Wow Billie! You really on top of it! Its like tw...Wow Billie! You really on top of it! Its like two full-time jobs! So glad the pony walker worked out! As far as eating in front of the TV, whatever works, right!? Hugs!Lisa Leonardhttps://www.blogger.com/profile/09000122580195871946noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-16472221404249852522007-05-21T00:47:00.000-04:002007-05-21T00:47:00.000-04:00What? Feeding your child in front of the TV is a ...What? Feeding your child in front of the TV is a bad thing? :0) Seriously, that's the only way I can get Halle to eat breakfast! <BR/><BR/>I'm so glad that things are "looking up" right now. I'm interested to see if the Periactin works for either of them. It's a miracle drug in our household.hallegracesmamahttps://www.blogger.com/profile/18330502847862607417noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-29048625447036705122007-05-21T00:32:00.000-04:002007-05-21T00:32:00.000-04:00I read the whole thing! Yay! Glad you all are doin...I read the whole thing! Yay! Glad you all are doing so well!Jenniferhttps://www.blogger.com/profile/05953851095648089488noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-88808536541699841822007-05-21T00:25:00.000-04:002007-05-21T00:25:00.000-04:00I can totally relate to the sleep issues. Eden so...I can totally relate to the sleep issues. Eden sounds exactly like my little guy. They are so stinkin smart and know exactly how to get what they want. Crew does the same thing with hogging the pillow and snuggling in so close that I can't breathe.<BR/><BR/>I hate insurance companies and medical supply idiots. I'm glad you were able to round up another pony walker and hope you can get one of your own soon:)Melhttps://www.blogger.com/profile/17143392629785332250noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-69047398705603199152007-05-21T00:15:00.000-04:002007-05-21T00:15:00.000-04:00Phew! That was exhausting just reading it! Glad yo...Phew! That was exhausting just reading it! Glad you got the pony walker and that the eating is going better. Good luck with the sleep issues! It will get better!!<BR/><BR/>Miss you!<BR/>AmyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-8253457382248641742007-05-21T00:09:00.000-04:002007-05-21T00:09:00.000-04:00I read every last word; and I do care about your ...I read every last word; and I do care about your girls! Don't you just love insurance and medical supply companies, but i'm glad that the school PT was able to help out. Keep up the great job with your girls. They are beautiful!Kacy Jeanhttps://www.blogger.com/profile/09227641926538250145noreply@blogger.com